Tuesday, December 29, 2009
Another day another doctor
Sunday, December 27, 2009
another night at the hospital
Thursday, December 17, 2009
Yet another apt.
Tuesday, December 15, 2009
Thank God!
Thursday, December 10, 2009
Just truckin along!
Monday, December 7, 2009
From www.TTTSfoundation.org
When you learn you are pregnant with twins, it is such a blessed moment in your life. You feel so fortunate and chosen by God to have such a special gift. You dream of holding two babies, dressing them the same and watching them grow up together. This is what God intended. God did not make a perfect world though. There is evil in this world and one form of it is a disease called twin to twin transfusion syndrome. It does not care who it hurts, and it always happens to the parents who want and love their babies so very much.
When parents learn that one of their babies has passed away, life will never be the same again. There is deep sorrow and shock. There is confusion about whether or not to deliver the babies. There is no reason to deliver the babies, unless the surviving baby is in major distress. There is a risk that the living baby may bleed blood to his or her twin, through the connecting blood vessels in their shared placenta that caused the twin to twin transfusion syndrome in the first place. If this happened, it was instantaneous at the time of the loss and already happened by the time you determined the loss. Delivering the babies, as many doctors think should happen, will not prevent it. It is better to stay pregnant and get to a gestational age to best help your surviving baby.
There is a period of about 2 weeks where if there are no signs of distress with the surviving baby then this “bleeding” in laymen’s terms, most likely did not happen. You should feel confident that your baby should be OK. Nothing will take away your fears completely until you deliver and the pregnancy is finally over and you hear your baby crying. But, let this give you a true understanding of hope that he or she will be just fine. You should also be getting blood work done to make sure your blood clotting mechanisms are working correctly within your own blood supply. This is a small risk, but one that should not be ignored.
When one of your babies has passed away, you will often hear hurtful comments such as, “They were not meant to be", "You could not have handled both", "God needed him or her more", "He or she was too sick to survive.....” All of these statements are not true. Your baby is a beautiful, healthy baby. It is just that the disease took its toll. Your baby will always be your baby and they will always be twins. It is not they “were” twins…it is that they always will be. You will always be the parent of twins too. The status will never be taken away from you and you should stay strong not to let anyone try to. The more you can speak up for yourself and your babies when these comments are made, the better you will feel about yourself.
Many will advise that you have to be “strong” for the other baby now…that you cannot fall apart or cry. This too, is not true. You don’t have to be strong. You don’t have to be anything. You will be strong regardless of trying to. It is OK to cry and even be hysterical. It will not hurt your second little baby.
Know that when your baby passed away, his or her twin had his arms around your baby. And, you had your arms around them both. You always will.
Know that we are here to talk with you, especially listen and cry with you. You are not alone. We are here to help you continue on in your pregnancy and plan for your compassionate delivery of your babies. Please know that God did not make this happen. God wants all babies to live. His hand will be in yours. Even if you pull your hand away…He will not let go. And when you can no longer stand, He will carry you.
Your babies love you with all their heart. They know that you have done and are doing everything you can for them. The only emotion that they feel is love for you, and they will always be with you. They will help you get through this and live your life bringing both of them with you. It will never be good-bye…only I love you.
Monday, November 30, 2009
Another day, another ultra sound
Wednesday, November 25, 2009
Bye Bye Cincinnati!
So today was our follow up appointment at Cincinnati!
Here is a recap of the progress with Lorelei's heart.
With regards to a heart, both the left and right ventricles are supposed to be performing at a certain rate labeled as "normal". This rate is .45
Before surgery Lorelei's heart (both ventricles) were at about .56... this constituted TTTS stage IIIc (I believe the beginning of that stage). This is where we get the cardiomyopathy. This is part of the reason we decided for the surgery. After surgery they expect to see no change. Apparently, our follow up 6 days after surgery showed that Lorelei's heart (both sides) went up to about .62 This is not good, so they had us return today for another follow up. After the ECHO today we got in early to see the doctor and he told us that things are looking better! Lorelei's heart is not recovered, however, her left ventricle is now at .48!!! Her right ventricle still has not changed, it is still around .62 The doctor is not overly concerned and stated that the right ventricle takes a longer time to recover/heal than the left. Same with the thickening around her heart, it has not changed. This is the last thing to see any changes.
So all in all, she is improving, but we're not out of the woods! They told us we did not have to return to Cincinnati and should be seen by a specialist in Indianapolis once or twice before delivery to ensure her heart is continuing to improve. We are to continue having weekly ultrasounds, unless my HR doctor says otherwise... and we are hoping for a delivery date of March 23rd at the earliest! I am also to stay on bedrest, STRICT bedrest for the rest of the pregnancy. As for any side effects of this for Lorelei, she maybe born with high blood pressure... but a good chance it will not have to be controlled by medication.
Also, last appointment we had her growth checked and she was 7oz and at the 54th percentile. TODAY Ms. Lorelei is 11oz and at the 85th percentile! She's a growing machine!!!
So here are the pictures that my mommy uploaded for me! I hope you can see them well enough. I'll be working on them some more to separate them and make them better to see. I have included pictures of Maddison as well...
Friday, November 20, 2009
Routine
Thursday, November 19, 2009
154 beats/min
Wednesday, November 18, 2009
I was kicked
Sunday, November 15, 2009
Saturday, November 14, 2009
And the races begin!
Tuesday, November 10, 2009
Lorelei's update
Sunday, November 8, 2009
We're getting there...
Thursday, November 5, 2009
To LIfe
Tuesday, November 3, 2009
The Skinny
Monday, November 2, 2009
CIncinnati
Sunday, November 1, 2009
Many thanks
Friday, October 30, 2009
The good and the bad
Tuesday, October 27, 2009
My growing belly
Friday, October 23, 2009
the once and future parent
Monday, October 19, 2009
Face meets Walmart bathroom floor
Tuesday, October 13, 2009
Week 12 photos
So Baby B is crazy! He/she is just a ball of energy and didn't want to stop moving until it's pictures was being taken! Here are our two little angels!
Wednesday, October 7, 2009
Oh husband!
Friday, October 2, 2009
Thanks Kathy! Babies are up!
So here are the pictures of our peanuts!
Thursday, September 24, 2009
Thud Thud Thud
Monday, September 14, 2009
Bumps and Bruises
Tuesday, September 8, 2009
Who's who?
Wednesday, September 2, 2009
Double the fun
Saturday, July 4, 2009
Recently recent
As the weather has been getting warmer Somkey has met some new friends "fireflys". Now picture our 115 lb dog looking at this bug as it coasts in front of his face... Then it lights up and Smokes jumps back like he got bitten by a tiger! We are still in need of getting him a doggie park pass.
A few weeks ago I took a week off of work to regain some sanity... Well that was fun. Jared and I spent some much need time with friends. We explored Indianapolis and went paddle boating and to Mortys comedy club.
Within this time jared and I have gotten hooked into the "crackberry" scene! We love the blackberry storms, but at times wed still like the I Phone!
Well seeing it is the fourth of July weekend we had a few things planned. Jared, Connie, Connies friend Ellen, and myself went to the Casting Crowns concert at Garfield Park in Indy. We had a great picnic dinner and enjoyed the show. One thing I least expected was the "pro-life" campaigns... Now I am personally pro-life, but I'm not an activist or world ever care to be. But when attending these venues I assume that's what you get. Today jared and I decided to check out some deals at some of the gyms in town. Well we joined LAfitness and it seems to have a lot of advantages. Now recently I have been told I have mild Osteopenia (joining the club!). I am also seeing a chiropractor a few times a week to help manage my pain. Well see how long I last! Jared is very excited!
At this point that's all she wrote!
Sunday, February 1, 2009
Biography
So here we are. This will be our biography... where we are, where we want to be, and how we plan to get there!