Sunday, November 1, 2009

Many thanks

First I wanted to say thanks to all who are keeping us in their thoughts and prayers. As stated in Lorel's post our twins are suffering TTTS. There are certain blood vessels in their placenta that are allowing them to share blood, and they are not sharing equally. Lorelei has far too much which can lead to problems like congestive heart failure, and Maddison has too little leading to anemia and malnourishment. The condition has a near 100% fatality rate if left untreated. Fortunately the treatment has very high survival rates. It entails going in with a laser and 'coagulating' the blood in the problematic vessels. Afterwards, the twins still get fed from the placenta but can't share blood with each other anymore.

I consider the string of coincidences surround our circumstances to be nothing short of miraculous: we found out we were having twins at 6 weeks instead of 22 (when the first ultrasound is normally performed), we started checking for the TTTS at 15 weeks instead of 16, one of the few fetal centers in the country that can perform the surgery is just 2 hours away in Cincinnati. The next closest one I know of is all the way in Philadelphia. From the early ultrasounds to having that center in our backyard, 'luck' doesn't even begin to cover it.

God has been with us so far through this process, and we give thanks. We are completely out of control, and as frustrating as it is to not be able to effect the process by our actions, it is a wonderful comfort to have the support we have around us from our medical practitioners, our family and friends, the Body of Christ, and of course God.

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