Friday, October 30, 2009

The good and the bad

So I am not going to write much because I do not feel well enough informed to update on this front.
GOOD NEWS
We're having girls! Lorelei MacKenzie and Maddison Olivia.

BAD NEWS
Maddison is diagnosed at stage III (low end) of TTTS... http://www.tttsfoundation.org/
We'll be going to Cincinnati on Monday evening to begin testing and get a laser surgery treatment to fix the problem. Basically... Maddison does not have as much placenta as Lorelei leading to smaller size and no diastolic blood pressure (I believe it's called). On the other side, Lorelei is/will receive too much blood which can lead to heart failure. Cincinnati is apparently a very specialized facility that cares for these cases many times a year. This TTTSyndrome is found in identical twins.

Over the past couple of days I/we have gone through guilt, failure, heart ache, etc... all it comes down to is that this condition is completely random and does not matter who you are or what you do. It happens to 15% of all identical twin pregnancies.

Our itinerary for Tuesday is

11/03/2009 08:15 AM CCHMC; Location B, Floor 1,Radiology-- MRI
Comment
11/03/2009 10:00 AM CCHMC; Location A, Floor 7, Fetal Care Center-- Ultrasound
Comment Connie Bitters, RN, RDMS
11/03/2009 01:00 PM CCHMC; Location C, Floor 4, Cardiology --ECHO
Comment

11/03/2009 03:00 PM CCHMC; Location A, Floor 7, Karen McGirr, RN, CNM, Fetal Care Center-- History and Physical
Comment:
11/03/2009 04:00 PM CCHMC; Location A, Floor 7, Foong-Yen Lim, Fetal Care Center-- Team Meeting Comment Attendees: University Hospital Maternal Fetal Medicine Specialist

We'll keep everyone updated!

Please keep praying!

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